Since this is a health related article, I’m going to jump right to the point: I had Inflammatory Bowel Disease (IBD) / Ulcerative Colitis (UC) for 3 years. I went on the Specific Carbohydrate Diet (SCD) for 10 months.
*** 2 years later update: While I expect I’ll have IBD for life it is completely manageable with the SCD diet. At this point I go in cycles of full SCD / full stupid. My symptoms return (never bad) and I go back on SCD & they go into full remission.
If you read no further, that’s what you need to know. If you have IBD, SCD will work for you.
I realize that is a bold claim which can’t be true every time. However, it’s true in my case and the case of thousands of others. I’ll start my story here – I have lived the last 20 years on one of the least healthy diets possible – straight sugar. That is important to note because up until 2015, I had never had any gut related issues. None. I have always exercised & been fit, which I believe offset my diet and kept me, apparently, healthy.
Now to the IBD story… September of 2015 I had my wisdom teeth removed. This was part of an oral surgery ordeal which is a whole other story. A standard practice for wisdom teeth removal is a 7-10 day course of prescription antibiotic. In my case, that antibiotic was Clindamycin. I had no idea what adventure this ridiculous drug was sending me on.
I started the course of Clindamycin on September 24th, 2015. I don’t remember when it started, but after a couple weeks I had a steady case of diarrhea. I figured it was due to my eating habits changing due to the teeth extraction and didn’t give it much thought. A couple weeks later my mouth was back to normal, my eating was back to normal, and diarrhea was becoming my normal.
After a couple more weeks it was clear that the diarrhea wasn’t going away by itself. I think I first tried some Imodium AD which made the situation more manageable, but after a week or so it clearly wasn’t a cure. At that point I made the connection between the antibiotic and diarrhea. Googling diarrhea & antibiotic immediately leads you to Clindamycin. I soon surmised that I had Clostridium difficile (C diff). I was astounded to discover that Clindamycin has a 20% chance of causing C diff and pissed that my oral surgeon had prescribed it – without so much as a passing comment to watch for diarrhea. If you want to be disgusted by a common drug, google Clindamycin and read the FDA warnings all over the web. How is this garbage still available??
I discovered this information a couple days before leaving for Ireland on a work trip. I went to the local Urgent Care, who were fortunately well equipped and I provided a stool sample for testing. A few days later, my wife called me and confirmed that I did indeed have C diff. The cure… a course of the antibiotic Metronidazole. I was pretty skeptical, but took the drug when I returned home. After a week, the diarrhea was finally resolved. I figured that was the end of the adventure and put the experience behind me.
Fast forward to February 2018, when, after a colonoscopy, I received a diagnosis of chronic active colitis consistent with inflammatory bowel disease. Biopsies were taken and submitted for testing. The Pathology report returned:
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- TRANSVERSE COLON (BIOPSY), R/O IDIOPATHIC INFLAMMATORY BOWEL DISEASE
CHRONIC ACTIVE COLITIS CONSISTENT WITH INFLAMMATORY BOWEL DISEASE.
Negative for granulomas and dysplasia.
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- RECTUM (BIOPSY), R/O IDIOPATHIC INFLAMMATORY BOWEL DISEASE
CHRONIC ACTIVE PROCTITIS WITH ULCERATION.
There is slight crypt distortion associated with increased lymphocytes, plasma cells, and lymphoid aggregates within the lamina propria. The active cryptitis is not associated with crypt abscesses or granulomas. These changes may be seen with a slowly-resolving self-limited proctitis, but may also be seen in inflammatory bowel disease. Clinical correlation is recommended
I won’t claim to understand exactly what the report says, but the words Inflammatory Bowel Disease are clear. I met with my GI doc in March, where he reported: “Patient was found to have colonic ulcerations in the rectum, and 1 in the transverse colon as well consistent with inflammatory bowel disease.” He asked me whether I’d been experiencing symptoms of IBD. I reported that I’d had infrequent diarrhea and a couple times had noticed blood in my stool. I hadn’t worried about either because they had been isolated incidents.
His solution was a prescription for Mesalamine. I asked if I needed to change my diet, to which he replied “Don’t eat chicken”. Uh… What?? He clearly believed that the drug was the solution and my diet was inconsequential. I didn’t press the issue, figuring I would do my own research and assess diet impact on IBD. I stopped at the pharmacy on the way home to fill the prescription. I learned a valuable lesson that day – always ask how much a prescription costs before filling it the first time. I choked when I got the bill, $1164 for a 3 month supply. If you don’t know me, I’m frugal (some have claimed ‘cheap’, they’re wrong). Looking down the path I was on, $400 a month for drugs was NOT going to work for me unless it was life threatening (and even then it’d be a debate).
Another thing about me… I have difficulty swallowing anything big. Which is just a cruel thing for nature to do to me after giving me a mouth that will fit a tennis ball. The Mesalamine was the size of a Pekingese and cannot be broken since the coating has to stay intact to control the time release of the medication. I wasn’t surprised when the first pill lodged in my throat and stayed there for a couple hours. I’m not exaggerating, it was a couple hours before I got it down. This was clearly not a solution for me, and was the only time I tried swallowing one. So, if anyone needs some Mesalamine, I’ve got $1152 worth of the stuff sitting on the shelf.
I’m a great troubleshooter and figure that with YouTube & Google, I can fix anything. That theory was sorely tested when I started researching IBD. Wow, the amount of information on the internet regarding IBD is staggering. It’s also incredibly contradictory and confusing. The only thing that everyone seemed to agree about was the advice – if it bothers you, don’t eat it. Ya, I needed the internet to tell me that. For every food you can find 2 types of people, one who says that food sets off an IBD attack and one who says that food is the only thing they can safely eat. My trouble was that with the infrequent & random symptoms I’d experienced it was impossible to identify any specific food related issue. For me it seemed more related to the amount of food over an extended period. I could eat anything I wanted with no symptoms. If I ate too much of what I wanted, over a month, I’d experience a bit of diarrhea. Easily remedied by not eating like a pig.
I spent a couple months researching IBD related diets with no clear direction developing. Then came my lucky break, clicking around IBD sites led me to a book on Amazon called “Breaking The Vicious Cycle” by Elaine Gottschall. The book had thousands of positive reviews. Reading through the reviews it literally seemed too good to be true. Story after story of people at least controlling their symptoms, at best, curing their disease. I researched the book further and found glowing reviews everywhere I went. I ordered it from Amazon – used of course – and my $7.52 diet bible was on its way.
I quickly read through the book and while it has a lot of in-depth information that was hard for me to follow, the high level info resonated with me. Reading this conclusion from 20 worldwide studies on the eating patterns of patients with ulcerative colitis was like looking in a mirror.
The connection between Crohn’s disease and a sugar-rich diet is proved beyond reasonable doubt.
The book then presents a diet called the Specific Carbohydrate Diet (SCD) that “breaks the vicious cycle” that is going on inside many of us. That cycle occurs when we get bad bacteria in our gut, followed by foods that bad bacteria feed on. This leads to damage in our intestine, which leads to malnutrition from our body’s inability to absorb nutrients from food. The cycle spirals downward, more bad bacteria, more damage, and poorer health.
The Specific Carbohydrate Diet premise is simple – you starve bad bacteria from your gut by eliminating all but single sugar molecule foods. And, you add good bacteria by eating homemade yogurt with the right bacteria for your gut.
In November of 2018, I started the SCD plan. I’ll admit, the first month I thought life wasn’t worth living. In my first 50 years of life my vegetable consumption consisted entirely of potatoes. I’d eat a banana every couple years just to say I’d done it. I had never eaten a salad. Never. Following a diet that consists mostly of food I’d never eaten was hard for two reasons, first, I didn’t eat them because I didn’t like them (ok, I’d tasted & spit out a few vegetables) and second, I had no idea what to eat nor how to prepare it. Fortunately, my wife, Peggy, both loves vegetables and is a good cook. She probably saved my life (she probably also saved her own, because that first month I was a bit grumpy). As I recall, the first month I lost 15 pounds and wondered if it was possible to consume enough calories on SCD to sustain life.
The second month things started improving. I ate my first grape. Literally, the first grape I’d ever eaten. I ate a lot of other things for the first time, too. None of them were tasty, but after 30 days of starvation, taste becomes a lower priority and survival instincts kick in.
Once I discovered SCD legal peanut butter and honey, the calorie problem was solved. Orange juice not from concentrate, with no additives is also legal – and I love orange juice. I started adding weight and happily had to slow down my eating. There are tons of resources for recipes and foods online and about three months into the diet I knew I could survive and stay on it.
Health problems are highly motivating and I followed the diet almost 100%. It is hard to stay on it when traveling, which I was doing for my job. I lived on fruit the first couple trips then I found Trader Joes & started driving straight there from the airport. I’d load up with legal foods and traveling got easier.
In January of 2018 I had my semi-annual GI doctor visit. I have a liver thing & get my blood tested every six months. I was very pleased to see that my blood lab reports had all improved. Two months on the diet and I was seeing objective improvement in my body. That was exciting and motivating.
In August of 2018 I had my next GI doctor visit. I felt good, but I didn’t expect the results I got. For the first time in 10 years, ALL of my liver blood test results were in the normal range. My Direct & Indirect Bilirubin had never been in the normal range. I don’t know that SCD is helping with my liver thing, but that result is incredibly exciting – maybe that liver transplant will keep waiting!
The doc was pleased with the blood test reports, but he was annoyed when I told him that I had taken 1 Mesalamine pill, choked on it and never attempted another. And, that I was addressing my IBD with the SCD plan. He hadn’t heard of SCD, so I gave him the highlights. Not surprisingly, he was skeptical and wanted me to take the Mesalamine. If necessary, he wanted me to take another drug to improve my ability to swallow. Uh, no thanks.
We compromised by me agreeing to get a Calprotectin Fecal test which would show the level of inflammation in my intestines. If the test showed any inflammation, I would have to figure out how to get those horse pills in me. I was nervous, but optimistic. A couple weeks after I’d submitted a sample, I got the call from the GI doctor’s office. The young lady simply said, “The results of your Calprotectin Fecal test are normal. Call the office if you have any questions”.
The actual test results were:
September 2019 Calprotectin, Fecal test
Result: <16
<16 – 50 ug/g = Normal
Follow-Up = None
I was below the Normal range. Unbelievable.
Here is a summary of what I believe happened.
I lived 50+ years with relative good health
I took Clindamycin which killed all, good & bad, bacteria in my gut.
I ate my normal diet of sugar – which fed the bad bacteria in my gut
After 2-3 years of this, I developed IBD / UC
I spent 9 months on the SCD plan
I’m now IBD free
I’m writing this article to share my experience in hopes that others with any version of IBD / UC will use SCD to restore their gut health. I won’t know for sure that it’s repaired the damage in my intestines until I have my next colonoscopy. However, I didn’t want to wait 3 years for confirmation before writing this article. From my experience, this is an incredible health restoration plan that practically no one knows about. So I’m doing my part to get the word out.
I will add, I have a good friend who has had IBD for 30+ years. He has been on SCD for about 3 months. He told me that he has never felt better and for the first time feels like he can control his health.
I am comfortable writing about emotionally vulnerable topics, but writing about my health vulnerabilities is very hard. I still think I’m invincible and it’s hard telling the world otherwise. That’s how important I think my story is.
Post Script: (I’ve had a few questions about whether I’m still on SCD)
After about 9 months of being as strict as possible on SCD I eased into eating some illegal foods to see how they would affect me. I was to be leaving on a 7 day cruise and wanted to know whether I needed to pack my own food. The test went well, with no noticable IBD symptoms. I went on the cruise and ate my pre-SCD diet – which means lots meat & sugar. Including ice cream multiple times each day. I never had an IBD issue on the cruise.
When I got home, I went back on SCD for a month or so, then the holidays hit & I’ve eaten normally since Thanksgiving. So, I’ve been completely off SCD for the last 60 days. No IBD related symptoms.
I can’t be 100% certain that I’m cured & will never need to eat SCD again, but it feels like I am. It’s very comforting to know that should I have problems in the future that SCD will work.
That’s the good news. The bad news is that I’m packing on the pounds like crazy so I’ve got to figure out a diet that will work for me long term. The one thing I do intend to continue is to make & eat SCD legal yogurt – I think the health benefits are worth the effort of making the yogurt.